Progress report

OK, time for some more details on what’s been going on over the last week or so.

You’ll recall that after Thursday’s intravenous treatment, I started taking the pills at home. All seemed reasonable at first – minor issues with what medical professionals like to call loose stools, which have nothing to do with anything you might pick up at Ikea, but a lot to do with getting to the bathroom quickly.

But Sunday night was BAD. I started my feed as usual, some time between 9:30 and 10pm. And had to pause at 3am for a high speed bathroom visit. At the risk of going into more detail than anyone would wish for, this wasn’t so much “loose” as “why has my bum turned into a hosepipe?”. I got back to bed and set the feed to a lower level to see if that would work.

Not so good, as it was folllowed by some advanced vomiting. Stopped the feed and tried to get some sleep.

In the morning, I phoned the help number at the Freeman Hospital. They suggested Imodium to stop the bathroom sprint. As my friend Barry was due to visit anyway, I asked him to bring some along, which he did.

I’d also read the leaflet in the box of chemo pills, which mentioned liquidity issues and advised not taking them until getting medical advice.

Monday night was worse – the sprint was required at 1am, and the vomiting was rough. Not the kind of thing where something you’ve eaten is quickly rejected, but violent retching of the please make it stop variety.  At that point I stopped attempting the feed.

Had a phone consultation with my GP – got a prescription for more Imodium and a sick note for the next 13 weeks.

Struggled through the day.

Called the Freeman again on Wednesday, and they asked me to come in. Aaron provided transport and company. Once they’d managed to find a working vein, they started getting fluids into me.

I was happy to be admitted for as long as needed to get me into a fit state.  Multiple anti sickness drugs were tried, and more fluids administered.

And so on until Thursday night when they injected me with a different anti sickness drug, which came with a promise of drowsiness, which sounded good to me – I hadn’t been sleeping well at all, not least because of having at least on violent sickness session each night, in addition to one or two through the day.

And this time, it worked. I slept! I didn’t throw up!

This morning I was able to swallow and keep down multiple glasses of water, and I’ve done more through the day.  No longer being dehydrated and addled by fluid and salt loss, I managed to have a shower in my ensuite bathroom (I’m in a single room here), which made me feel a lot better.

The plan now is to keep me here over the weekend, and then it’s all change.

Early next week, quite possibly Monday (not confirmed yet), I’ll be taken to the RVI, where I’ll have yet another endoscopy and have a stent fitted in place of the feeding tube.

The stent will, once it’s settled in, let me get back to eating. Not a full, unrestricted diet, as it will need to be softer food, but I’d be able to have such things as cottage pie, Rice Krispies, and ice cream. This would be a huge improvement in the quality of my life. Not being tethered to a feed pump overnight will als be a major improvement, not to mention not having a plastic lump coming out of my nose.

Updates will follow when something happens.

5 thoughts on “Progress report

  1. RobertH

    I’ve got quite a lot of experience with the “bum as hosepipe” thing the last few years. *Not* fun. :-(

    Thankfully, not continuously (for years).

    I too am available for support(for what its worth), from a distance, as I can’t travel worth a damn.

  2. Steve

    Thanks for the detailed update Les. I really feel for you and hope so much that things settle down soon. Getting back to some normality would help a lot I’m sure. Glad they are looking after you. Take care.

  3. John Etie

    I wish I could think of something profound and uplifting to say but we all know what a twat I am. I hope you are finding a way through this mess and that you feel better as soon as possible.

    Love, John


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